GVF Committees

Board of Directors

Henry W. Lim, MD

Henry W. Lim, MD

Founder, Member-At-Large

Henry Ford Hospital

Iltefat Hamzavi, MD

Iltefat Hamzavi, MD

Founder, Co-Chair

Henry Ford Hospital
Hamzavi Dermatology

Kim Boyd

Kim Boyd

Treasurer, Patient

Comerica Bank

Pearl Grimes, MD

Pearl Grimes, MD

Member-At-Large

The Vitiligo & Pigmentation Institute of Southern California

John H. Harris, MD

John H. Harris, MD

Member-At-Large

University of Massachusetts Medical School

Amit G. Pandya, MD

Amit G. Pandya, MD

Member-At-Large
Vicki Tiahrt

Vicki Tiahrt

Member-At-Large, Patient

Tiahrt Enterprises, LLC

Richard Huggins, MD

Richard Huggins, MD

Member-At-Large

Henry Ford Hospital

Standing Committees

Click on the committee name below for additional information.

Advocacy Committee

Purpose:
The goal of the GVF Advocacy Committee is to:

  1. Help educate, advocate and promote education and awareness of vitiligo to local, state and federal government entities, insurance companies, third party payers, and special interest groups

  2. Increase awareness of vitiligo as a disease, its treatment, and patient related issues to policymakers through efforts of advocacy and by combining the efforts of vitiligo clinicians, researchers, patients, support groups.

  3. To identify challenges and opportunities with reimbursement for the treatment of vitiligo.

  4. Have a continual and ultimate goal of finding a cure for this devastating disease.

Chair:
Seemal R. Desai, MD, FAAD
Founder & Medical Director
Innovative Dermatology, PA
Clinical Assistant Professor
Department of Dermatology
University of Texas Southwestern Medical Center
Dallas, TX, USA

Global Vitiligo Support Community (GVSC-Patient Support)

Purpose:
The main goals of the Global Vitiligo Support Community are to:

  1. Serve as a forum for information-sharing and collaboration on mutually beneficial activities for local, regional, national and international vitiligo support organizations and to provide educational resources

  2. Serve as a conduit between the vitiligo patient and the other committees of the GVF

  3. Empower individuals with vitiligo by providing them with resources to manage the physical and psychosocial effects of vitiligo today

  4. Provide a vehicle through which vitiligo patients can help support the development of  treatments and, ultimately, a cure for vitiligo in the future

Chair:
Richard H. Huggins, MD
Senior Staff Physician
Department of Dermatology
Henry Ford Hospital
Detroit, MI, USA

Governance & Finance Committee

Purpose:

  1. Provide oversight over the group as a whole and ensure that finances are in line with the GVF’s vision

  2. Research and submit sponsorship grants

Chair:

Henry W. Lim, MD
Chairman and C.S. Livingood Chair
Department of Dermatology
Henry Ford Hospital

Research and Education Committee

Purpose:

  1. Act as a liaison between the GVF and individual researchers who study vitiligo in order to identify needs of scientists and determine how best to fulfill those needs through the resources of the GVF

  2. Organize meetings of these scientists, identify agenda topics for discussion, and communicate ideas back to the larger GVF

  3. Interface with other subcommittees to help them on their items when needed. For example, the advocacy subcommittee needed biomarker data on patients following treatment to help the advocacy committee work to have insurance plans to cover phototherapy for vitiligo. This is an ongoing project for us.

Chair:

John E. Harris, MD, PhD
Assistant Professor of Medicine, Division of Dermatology
Director, Vitiligo Clinic and Research Center
UMass Medical School

Ad Hoc Committees

Click on the committee name below for additional information.

Imaging Committee

Purpose:
To advance research in vitiligo using various imaging modalities such as confocal microscopy, 3-D photography, and diffuse reflectance spectroscopy in order to:

  1. Assess disease activity
  2. Evaluate response to therapy
  3. Make advances in diagnostic and therapeutic applications of imaging in vitiligo

Chair:

Indermeet Kohli, PhD
Cutaneous Research Physicist
Department of Dermatology
Henry Ford Health System
Detroit, MI

Media Committee

Purpose:

  1. To carry out the mission of the GVF through dissemination of information on a local, regional, national, and global level
  2. To utilize social media platforms to increase awareness for vitiligo and increase research funding for vitiligo
  3. To develop and maintain a web and social media presence for the work generated by the GVF committees
  4. To develop digital and printed media as needed for physician and patient education

Phototherapy Committee

Purpose:

  1. Use the best scientific evidence available to develop international standards of care in the treatment of vitiligo with phototherapy
  2. Identify gaps in care and areas requiring further research
  3. Improve the quality of life of patients by creating integrated phototherapy protocols that are broadly applicable.

Chair:
Samia Esmat, MD
Professor of Dermatology
Cairo University

Phototherapy Consensus Panel Members:
Iltefat H. Hamzavi, MD
Amit G. Pandya, MD
Giovanni Leone, MD
Raúl Cabrera, MD
Mohammed Aljamal, MD

Surgery Committee

Purpose:

  1. To review and promote best practices in the surgical treatment of vitiligo
  2. Identify and share updated research and techniques with the vitiligo community