Serving the greater vitiligo community

Committees & Taskforces

Click on the committee name below for additional information.

Relevant GVF Strategic Plan Goals and Tactics

Goal 1: Governance & Operations

  • Tactic 2: Develop a plan for staff growth to match strategic plan
  • Tactic 4: Expand board to include more diversity of experience, such as individuals with vitiligo, fundraising expertise, and young MDs
  • Tactic 7: Update bylaws, policy and procedure, and other governance documents

Goal 2: Support

Tactic 3: Generate funds from stakeholders to support GVF.

Time Commitment (1-2 year term)

Estimated average time commitment per month- 3 hours

  • Four+ conference calls a year (~1-2 hours per call)
  • Regular email communication with committee and staff
  • Outreach and follow up with donors (phone calls and emails)
  • Review and drafting of documents

Decision-making authority

  • Draft recommendations to the board of directors

Duties and Responsibilities

  • Establish a fundraising plan, goals, and action plans, in concert with staff, to support the organization’s short and long-range goals and objectives.
  • Ensuring that the case for support is strong, current, and based on the organization’s mission and strategic plan; and distinguishes the organization from others in the field
  • Work with appropriate staff in their efforts to raise money.
  • Recommend fundraising goals to the Board for approval.
  • Take the lead in fundraising outreach efforts.
  • Assist in identifying and cultivating prospects, determining whether a potential donor’s interests and values match those of opportunities at GVF, and if so, asking them to contribute financially to accomplish mutual objectives by assisting with development efforts.
  • Help to evaluate potential prospects for increased contributions

Deliverables

  • Board fundraising goals for the year
  • Fundraising/Development SWOT Analysis
  • Current and prospective donor list
  • Sponsorship Packages
  • Write a draft of recommended policies, procedures, and guidelines for board review and approval
  • Gifts, grants, and sponsorships
  • Recommend policy to the Board on all matters relating to the fundraising program, including:
    • Donor confidentiality, gift acceptance, donor recognition, planned giving
    • Provide input to the Governance Taskforce to ensure the recruitment of Board members able and willing to secure financial and other resources for the organization.
  • Create specific, measurable, board-level goals for the year. Annually evaluate its work as a Committee and the objectives it has committed itself to, and report on the same to the full Board of Directors
  • Review grant opportunities list provided by staff.
  • Coordinate the implementation of the development plans

Chair

Amit Pandya, MD

Relevant GVF Strategic Plan Goals and Tactics

Goal 1: Governance & Operations

  • Tactic 3: Restructure, define and support committees and task forces

Goal 2: Support

  • Tactic 2: Develop and utilize resources to increase public awareness of vitiligo
  • Tactic 5: Lobby governmental and regulatory agencies to increase vitiligo research funding, national awareness, and legislation.

Goal 3: Individuals with Vitiligo

  • Tactic 1: Dialog with support group communities regarding the best way for GVF to help them provide support to individuals with vitiligo.
  • Tactic 2: Create a framework/template for existing and new support communities.
  • Tactic 3: Promote positive interaction between individuals with vitiligo and the medical community.
  • Tactic 5: Improve support groups’ leadership skills.

Time Commitment (TBD year term)

  • TBD conference calls a year (~1-2 hours per call).
  • Regular email communication with patients/individuals with vitiligo, committee, and staff.
  • Outreach and follow up with support group leaders.
  • Review and drafting of documents.
  • Requested attendance at the GVF Annual Scientific Symposium.
  • Requested attendance at the World Vitiligo Day-USA.

Decision-making authority

  • Draft recommendations to the board of directors.

Duties and Responsibilities

TBD

Chair:
Kimberly Boyd
VP Vitiligo Support Committee

Relevant GVF Strategic Plan Goals and Tactics:

Goal 1: Governance & Operations

  • Tactic 3: Restructure, define and support committees and task forces
  • Tactic 5: Examine a process for establishing thoughtful and regular board turnover
  • Tactic 7: Update bylaws, policy and procedure, and other governance documents

Time Commitment (1-year term)

Estimated average time commitment per month – 3.5 hours

  • ~Four conference calls (~1-2 hours per call).
  • Regular email communication with the committee and staff.
  • Review and drafting of documents.
  • Internet Research.

Decision-making authority

  • Draft recommendations to the board of directors.

Duties and Responsibilities

  • Make recommendations to the board on governance documents: bylaws, policies, practices and procedures, and board turnover.
  • Monitor compliance with nonprofit governance regulations and, accordingly, provide prudent and timely guidance to the board.
  • Review and make recommendations to the board to changes recommended by staff, including issues regarding disclosures, policies, and ethical considerations.

Deliverables

  • Review bylaws. Research, edit, and send the final draft to the board for review and approval.
  • Establish a recommended list of policies and procedures to the board for consideration.
  • Draft policies and procedures from the approved board list for final board review and approval.
  • Determine current board skill sets, determine the needed skills of future board members. Draft a shortlist of potential candidates for the board review.
  • Develop a timetable for current board member turnover.

Chair

Henry W. Lim, MD
Chairman and C.S. Livingood Chair
Department of Dermatology
Henry Ford Hospital

Committee Charter

The Communications Committee is responsible for increasing awareness of the GVF brand, creating and/or reviewing documents for public consumption, and working with other GVF committees on the publication of digital and paper materials.

The committee shall work with the staff and other GVF committees in developing documents that represent best practices for websites, videos and patient and physician resources. The Committee will identify gaps in the current website and marketing plans and report them to the board for considered action.

Relevant GVF Strategic Plan Goals and Tactics:

Goal 5: Branding

  • Tactic 1: Revamp website
  • Tactic 2: Branding/logo/name
  • Tactic 3: Increase social media engagement
  • Tactic 4:  Refresh and create GVF videos
  • (G5T5) Develop a newsletter for members/constituents.

Composition

A recommended maximum of 5 people. Comprised of at least one (1) GVF board member and additional interested parties.

Time Commitment (1 year term)

Estimated average time commitment per month – 3 hours

  • ~Four conference calls (~1-2 hours per call)
  • Regular email communication with committee and staff
  • Review and drafting of documents
  • Internet Research

Decision making authority

  • Draft recommendations to the board of directors
  • Draft documents for review and approval by GVF board.

Committee Charter

The Communications Committee is responsible for increasing awareness of the GVF brand, creating and/or reviewing documents for public consumption, and working with other GVF committees on the publication of digital and paper materials.

The committee shall work with the staff and other GVF committees in developing documents that represent best practices for websites, videos and patient and physician resources. The Committee will identify gaps in the current website and marketing plans and report them to the board for considered action.

Duties and Responsibilities

  • (G5T1) Review website and make recommendations for updates and new content to the board and staff
    • Collect data on website usage and survey potential users (physicians/patients/persons with vitiligo) on what resources they think are currently lacking and what they would like to see on the website
    • Work with the Vitiligo Support Committee to determine their recommended resources and documents
  • (G5T3) Review past and current social media and make recommendations for updates and new content to the board and staff
  • (G5T1) Once approved by the board, write some of the content for the website and resource documents, seek additional volunteers to draft documents
  • (G5T2) Work with staff to develop a consistent brand around the new logo
  • (G5T2, G5T3) Develop a marketing strategy that will help define key audiences, marketing vehicles and the data needed to support and advance it
  • (G5T2, G5T3) Identify patients/persons with vitiligo and connect him/her to staff to develop patient stories for use in social media and on the website
  • (G5T2, G5T3) Identify physician/researcher and connect him/her to staff to develop stories for use in social media and on the website
  • (G5T1) Secure patient photos, necessary releases, and other similar images to add more depth to the website.
  • (G5T4) Determine the need for updated videos and potential topics for new videos and submit a report to the board consideration.

Deliverables

  • Website review report (G5T1)
  • Social media report (G5T3)
  • Content for website/social media (G5T1, G5T3)
  • Brand guidelines (G5T2)
  • Marketing strategy and action items (G5T3)
  • Patient and Physician stories (G5T1)
  • Draft policies and procedures from approved board list for final board review and approval

Chair

Nada Elbuluk, MD

Committee Charter

The Scientific Meetings Committee is responsible for developing scientific meetings for GVF. These meetings will promote the education of physicians, residents, fellows, non-physician scientists, and other healthcare providers to improve knowledge of vitiligo etiology, epidemiology, quality of life, biology, diagnosis, and management.

The committee will also encourage the development of updated academic training curricula on the diagnosis and treatment of vitiligo at other scientific meetings and dermatology training programs.

The Committee shall work with the staff in developing the annual GVF Scientific Symposium and when hosted, the Vitiligo International Symposium (VIS), and shall perform such other duties as may from time to time be requested by the Board.

Relevant GVF Strategic Plan Goals and Tactics:

Goal 2: Support

Tactic 2: Develop and utilize resources to increase public awareness of vitiligo.

Goal 4: Knowledge

Tactic 1: Provide educational content for all stakeholders (FDA, NIH, payors, physicians, patients, researchers).

Co-Chairs

Iltefat Hamzavi, MD & Khaled Ezzedine, MD, PhD

Ad Hoc Committees

Click on the committee name below for additional information.

Purpose:
The goal of the GVF Advocacy Committee is to:

  1. Help educate, advocate and promote education and awareness of vitiligo to local, state and federal government entities, insurance companies, third party payers, and special interest groups

  2. Increase awareness of vitiligo as a disease, its treatment, and patient related issues to policymakers through efforts of advocacy and by combining the efforts of vitiligo clinicians, researchers, patients, support groups.

  3. To identify challenges and opportunities with reimbursement for the treatment of vitiligo.

  4. Have a continual and ultimate goal of finding a cure for this devastating disease.

Chair:
Victor Huang, MD

Purpose:

  1. Act as a liaison between the GVF and individual researchers who study vitiligo in order to identify the needs of scientists and determine how best to fulfill those needs through the resources of the GVF

  2.  Review applications and award research grants for vitiligo research

  3. Interface with other subcommittees to help them with their items when needed. For example, the advocacy subcommittee needed biomarker data on patients following treatment to help the advocacy committee work to have insurance plans to cover phototherapy for vitiligo.

Chair:

John E. Harris, MD, PhD

Members:

David Rosmarin, MD
Youwen Zhou, MD

Purpose:
To advance research in vitiligo using various imaging modalities such as confocal microscopy, 3-D photography, and diffuse reflectance spectroscopy in order to:

  1. Assess disease activity
  2. Evaluate response to therapy
  3. Make advances in diagnostic and therapeutic applications of imaging in vitiligo

Chair:

Indermeet Kohli, PhD
Cutaneous Research Physicist
Department of Dermatology
Henry Ford Health System
Detroit, MI

Purpose:

  1. Use the best scientific evidence available to develop international standards of care in the treatment of vitiligo with phototherapy
  2. Identify gaps in care and areas requiring further research
  3. Improve the quality of life of patients by creating integrated phototherapy protocols that are broadly applicable.

Chair:
Samia Esmat, MD
Professor of Dermatology
Cairo University

Phototherapy Consensus Panel Members:
Iltefat H. Hamzavi, MD
Amit G. Pandya, MD
Giovanni Leone, MD
Raúl Cabrera, MD
Mohammed Al-jamal, MD

Purpose:

  1. To review and promote best practices in the surgical treatment of vitiligo
  2. Identify and share updated research and techniques with the vitiligo community

Committee Charter

The WVD-USA Advisory Committee is responsible for advising the GVF board on persons with vitiligo-centric events, specifically the WVD-USA event. The committee will look at policies, procedures, timelines, deliverables, outcomes, and will review and score potential WVD-USA host applications.

The Committee shall work with the staff to fulfill its responsibilities, draft the committee deliverable, and shall perform such other duties as may from time to time be requested by the Vitiligo Support Committee (VSC) or GVF Board.

Relevant GVF Strategic Plan Goals and Tactics:

The committee will be involved with all the following, but not necessarily responsible for the entirety of the tactic.

Goal 4: Knowledge
Tactic 1: Provide educational content for all stakeholders (FDA, NIH, payors, physicians, patients, researchers).

Goal 3: Individuals with Vitiligo
Tactic 3: Promote positive interaction between individuals with vitiligo and the medical community.

Chair

Kimberly Boyd